The largest patient-generated FND research dataset in the world
1,668 people across 16 countries are tracking their Functional Neurological Disorder — symptoms, emotions, triggers, flares, and co-occurring conditions — every single day. This is what their data reveals.
1,668
Registered users
16 countries
6,031
Daily symptom logs
49 emotions tracked
803
Flare episode reports
Before & after mood data
5,097
Co-occurring conditions
551 respondents
About the Data
What is NeuroLog?
NeuroLog is a patient-built symptom tracking platform for Functional Neurological Disorder. What started as a personal tool to prepare for medical appointments has grown into a comprehensive research resource — capturing longitudinal, real-world data that no clinical trial could replicate.
Users log daily check-ins covering severity, symptoms, emotions, physical and emotional intensity, triggers, and free-text notes. During acute episodes, they record detailed flare reports with symptoms, triggers, emotions, treatments used, effectiveness ratings, and mood before and after. A separate co-occurring conditions questionnaire captures the full breadth of what travels alongside FND — with timing, diagnostic status, and impact data.
The result is three interconnected data streams that can be cross-referenced to reveal patterns invisible to any single method of collection — from how specific emotions correlate with symptom severity, to which coping strategies actually work during flares, to which conditions pre-date FND and which follow it.
Demographics
Who Uses NeuroLog
207 users completed demographic profiles. The population is predominantly female, spanning ages 16–80+.
Age Distribution
207 respondents
Gender
207 respondents
Symptom Landscape
Most Reported Symptoms
Across 6,031 daily logs, these are the symptoms most frequently reported by users.
Top 10 Symptoms by Frequency
Number of daily logs where symptom was reported
Extreme Fatigue
3,935
Brain Fog
3,139
Difficulty Concentrating
2,757
Limb Pain / Numbness
2,725
Body Tremors
2,547
Headache
2,516
Muscle Weakness
2,422
Sound Sensitivity
2,229
Light Sensitivity
2,065
Balance Issues
2,014
Co-occurring Conditions
What Else Travels with FND
551 respondents reported 5,097 co-occurring conditions — an average of 9.3 per person. FND rarely travels alone.
9.3
Mean conditions per person
Across 551 respondents, the average person with FND is managing 9 additional conditions alongside their neurological symptoms.
62%
Pre-date FND diagnosis
The majority of co-occurring conditions were present before FND was diagnosed — challenging the assumption that FND is the primary condition.
36%
Rated high-impact
Over a third of all reported conditions are described as having high impact on daily life, reflecting the burden of multimorbidity.
Prevalence by Category
% of 551 respondents reporting ≥1 condition in each category
Anxiety & Mood
70%
Movement & Neuro
70%
Sleep
60%
Trauma & Dissociative
59%
Pain, Fatigue & Sensory
58%
Gastrointestinal
57%
Neurodevelopmental
48%
Hormonal & Repro
46%
Full Research Dataset
What the Complete Analysis Reveals
The full NeuroLog research dashboard contains deep analysis across six domains. Here's a preview of what's available to research partners and data licensees.
Available in full dataset
Seizures / Dissociative
1,451
logs · severity 6.8
Tremor / Movement
2,786
logs · severity 6.5
Weakness / Paralysis
2,514
logs · severity 6.4
FND Subtype Phenotyping
Seven FND subtypes mapped by emotional profile, trigger signature, and severity pattern. Includes emotion × subtype heatmaps, trigger × subtype heatmaps, and flare-level analysis showing how emotional profiles shift during acute episodes.
Autonomic Response Evidence
Data-backed evidence for distinct flight and freeze phenotypes within FND. Functional seizures show sympathetic activation with anxiety 1.77× overrepresented. Movement disorder shows autonomic shutdown with a 3:1 physical-over-emotional intensity gap.
Treatment Effectiveness Ratings
14 coping strategies rated by effectiveness during flares. Results challenge assumptions about active coping — environment-based interventions consistently outperform commonly prescribed techniques. Includes subtype-specific effectiveness analysis.
Comorbidity Timing Analysis
Full breakdown of 5,097 co-occurring conditions with timing data (before/after/same year as FND), diagnostic status, and impact ratings. Category-by-category before-FND rates reveal which conditions are precursors and which are consequences.
Flare Episode Analysis
803 acute flare reports with pre- and post-episode mood tracking, symptom clustering, trigger sharpening patterns, and emotional intensification data. Shows how daily patterns transform under acute stress.
Emotion–Severity Correlations
49 emotions mapped to symptom severity, physical intensity, and emotional intensity. Reveals which emotional states amplify physical symptoms and which are protective — with implications for therapeutic targeting.
Interested in accessing the full dataset?
NeuroLog's research data is available to academic institutions, pharmaceutical companies, health services, and digital health organisations through data licensing agreements and research partnerships.
